Wading Back In

It is the first day of summer vacation, and a small wading pool – only 2 feet deep in the center and perfect for babies to explore water for the first time, and toddlers learn to limits of their bodies in water – is open for business. I have steeled myself to the reality that we will live at this pool this summer, as Noah loves nothing more than being in the water. And oh is he a shiny little fish; skin bronzed no matter how much sunscreen we use, brown hair turning to a bright white-blond, big round eyes glowing with glee. It is impossible to say no to him as he digs his swim trucks—blue with multi-colored sharks—out of the laundry or his drawer and brings them to us, indicating wordlessly that he wants to swim. Or rubs his brown little hands together as though he is warming them over a fire in his made-up sign language for “I want to swim.”

Last year, I couldn’t bear to take him to the pool and that job fell to Mark who, lucky for me, was also on vacation from teaching school. My phobia of taking Noah to the pool began earlier, when at 2 years old, Noah could not walk like the other toddlers, so we were forced to spend hours bent over him, holding his hands, supporting his hips, a job as physically taxing as it was emotionally exhausting as other kids dashed around us, at high speed and high volume, and while other parents relaxed away from the water against the chain link fence, chatting to each other, or welcoming their soaked and dripping children into their towel-clad arms when the kids needed a break from the water.

The next year, he could walk, but he stumbled awkwardly through the water, splashing with flappy hands and jerky arms, screeching loudly and incoherently, while other children his age played ball or shouted, “Watch me, Mommy!” Oftentimes I found myself carrying on a narrative with Noah, or at Noah, whenever we were in a public place to explain off his odd behaviors. “You sure are having fun, aren’t you, honey?” I’d ask him, rhetorically of course since he couldn’t answer. Or perhaps I’d aim my narrative to the closet adult who certainly hadn’t queried me: “He really loves the water. He’s a Pisces, after all.” Just to get tolerant or confused close-mouthed smiles directed back at me that I often read as pitying.

This year, I’d resolve to put that all aside, to finally fucking get over myself, so on this first day of summer vacation, on this first day that the pool is open, we are one of the first to arrive. We pass through the gated entrance on our way across the blank cement expanse surrounding our small neighborhood wading pool, my son in his stroller, a bag of swim toys strung over my shoulder. I am full of optimism and resolve. Noah is squirming excitedly with a grin that fills my heart with such pure joy that it is like pulling the curtains open to a sunny day. As we greet the lifeguard, or rather the teenager who is probably paid $6 an hour to tell the older kids to stop running, a man says to Noah and indirectly to me, “You’re a big boy; you should be walking.”

Suddenly time stops, a shot of adrenaline shoots from my gut down to my knees, my blood running through my body like electricity, like rain through a gutter, like fiery lava from a volcano. I stopped and looked at the man. Reduced. Reduced to the surge of feeling filling my body at the mere occurrence of being seen, of being judged by this man. Yes. My son is in a stroller and he is 4 year old. Not many children would allow such a thing. No. Not many parents would allow such a thing. My friend says her 1 year old, who is not yet standing on his own, is lazy. Lazy boy, she says with affection. A few times, when my son was younger, when he was still not walking at age 3, she would ask, “Is it possible that he is just lazy?” And I didn’t take it personally. Well, not very.

Where is that armor I should have developed, like a turtle’s shell, or a callous, over my heart? When the kids in school called me “limphead” (ingenious teasing as that was) and used the staggered bleacher seats to mimic my uneven walk. When the boys in that loud black car zoomed past the tennis court where I was teaching myself how to play at 30 years old, yelled “Hey Fatty” and laughed. When my 3 year old son, tantruming in the enclosed entryway of the solemn nature conservatory–because he is not able to tell me what he wants and I am often so unable to understand what he wants–while a grandmother firmly instructs her grandchild not to act like “that child” during their visit.

All those times I’d wanted to crawl into a hole, but I hadn’t truly toughened up. More often I wanted to retire my little family to a cabin–maybe a cave–in the northwoods of MN where in my imagination we would be self-sufficient, where we could escape, live off the social grid, where my son could grow up and learn to whatever his ability, whatever his interest, whatever it was that he needed to learn to just be, to just be himself, and not be the things that the television and the magazines and the internet and the other parents and the relatives and the friends thought that he should learn, and he should do, and he should be. Maybe in my mental pictures of such a utopian place, he would learn how to garden, how to cook the food we harvested, train his dog and build that dog a house with simple hammer and nails and wood, nothing fancy, nothing intricate. Somewhere we could live unseen. Not be subject to comments, to judgment. This has been a fantasy of mine since Noah’s difference stopped being “delays” and became “disabilities.”

But on this day, after the surge of feeling and reflection and the familiar flicker of regret passed, something was different. On this day, I was angry. I was angry at this man for daring to pass judgment. For thinking that he knew anything about me, anything about my son. Simply because of what he saw. No, he didn’t know anything. But I did. I knew that Noah loves trucks and trains, gum, our dog, the playground, the swimming pool, school, his daddy and me. I knew that Noah had just learned to hold his breath underwater and he would be eager to show me and everyone how he can “swim”. I knew that he would see the other kids in the pool, look at me and make his sign—one index finger laying over the other—for “friends” in a hopeful question that I would lift him out of his stroller and let him go play. I knew that that man didn’t know a damn thing about us. That whatever he thought he knew was baseless. And I wondered how it had taken 38 years for me to realize that whatever had been said to me, or thought, or wondered about me, hadn’t mattered, because it was groundless, a fiction.

I push the stroller around the arc of the wading pool, park the stroller next to a bench and set our bag on the cement. I reach out to help Noah out of his stroller, bending my knees to lift him since he is now 35 lbs and I don’t want to risk hurting my back. The second his feet hit the ground, he is off and running in that goofy fast walk that thrills me no matter how awkward because we waited for so long for him to walk at all. He hurtles himself into the water as I kick off my shoes and wade in behind him.

Cosmogony

To see him lying there, bloated and nearly naked due to feverishness, tubes like exterior veins protruding out of his neck in a knot of grotesque jewelry, a patch of dark blood–had it gushed?–spread out and dried on his chest, a thrum thrust through my torso like when a plane breaks the sound barrier. He turned to me when I arrived, when I said, “Wow,” careful to keep a certain amount of lightness in my voice, like when you slip on the ice and fall hard but assure everyone concerned that you’re just fine, and he said, “I’m sorry, honey.”

I think at that point he probably knew it was bad since the machine those tubes attached him to was removing his blood, cleaning it, and returning it, in an effort to quickly reduce the number of white blood cells which had been replicating unchecked in his blood. A science teacher, a teacher of biology and chemistry, certainly he knew. But he is also a pragmatist with a healthy shot of optimism. In other words, he’ll face what he has to face, but he won’t think the worst until it’s absolutely proven to be happening. Then it’s a matter of science; luck hasn’t much to do with it.

The women from the blood center who worked the machine, who showed me the bags of his blood, both red and white, mentioned chemo to one another. I didn’t let on that I’d heard, but soon I went out into the hallway to find the hematologist and suggested they make an effort to talk to him about the chemo since he had not been told directly that he had anything that necessitated such treatment. I said all this without so much as a crack in my voice. She was unwilling to commit, to declare it was cancer, to say more than that they suspected a form of leukemia, because the lab results weren’t in yet. But she promised to have the resident stop by and explain what they’d learned as soon as she could track him down.

I went to his bedside, and asked if they’d told him they were going to start chemo, that it was likely leukemia. He said no. He stared up at the ceiling. Tears pooled in his eyes. And then they were gone. I told his parents when they arrived–they drove from Minnesota on a feeling that things were not all they appeared to be, parents who had already lost a son to cancer–, that it was likely leukemia. His mother shook her head, said it might not be, that the tests might reveal a less devastating diagnosis, but I was sure, just as I’d known there was something wrong with our son’s development before anyone else believed it could be true.

The resident explained to us what Acute Myeloid Leukemia was. He used simple pictures on a white board to illustrate what had happened in Mark’s body before we could know it was happening. My memory of these moments is solid–I see the room, his rough sketches, and hear the resident’s voice, a reassuring Indian sing-song, clearly–but I’ve turned the information around in my head so many times, trying to apply some sort of logic to the incredible, that I’m afraid each time I speak that I’m repeating some laughable interpretation of the facts like a game of telephone.

As I understand it, a chromosome went wrong and one rogue cell started birthing premature white blood cells which then replicated more premature white blood cells, ad infinitum, driving the platelets and red blood cells out of the neighborhood that was his bone marrow. And because immature cells can’t do the work that mature blood cells can, his immune system was an inadequate barrier against any kind of illness. The cause is a gene mutation, a mutinous enzyme, a scratch on the record, that caused his cellular production to go awry. If left untreated, the immature white blood cells would proliferate until he is dead. Because this new chromosomal error is uneditable, they must clean out his bone marrow and replace it with another person’s.

Some leukemia survivors regard their bone marrow transplant to be a rebirth. They take pictures of themselves celebrating their new birthday. Some report changes in their bodies–gluten intolerance, overly-sensitive skin, a lingering fatigue. Some make vague references to not feeling quite themselves. But I can’t help but fear, in a kind of wondrous disbelief that the best science fiction engenders, that the man I married, whom I have lived with for the past 20 years, will not, at the end of this odyssey, be the same. Is this the ultimate test of nature versus nurture? Creationism versus evolution?

Our son’s neurological disorder is undiagnosed. The closest we get is to say he has a seizure disorder, but there is no answer to the question: why him? There is no cause determined, no prognosis predicted. The geneticists and the neurologists and the epileptologists and the other specialists have looked at his test results, the scans of his brain, the vials of blood and spinal fluid, the space between his eyes, the shape of his fingernails, and found nothing to explain why he is as delayed as he is. Is he–are we?—just unlucky? Perhaps the world would be a friendlier place for him and for me if we had an explanation for the idiopathic symptoms that plague his development and his safety. Maybe we could put the questions to rest–Is it something I did?–but then what good has that done us in Mark’s case? Leukemia is something that makes sense to doctors; it is an affliction that has a rote protocol. But it doesn’t mean we don’t ask the same questions: why him? why us? what happened?

Life strikes. Bang. Mark’s cancer was like a car crash without the car. One day he was home, then the next he was beginning a month in the hospital, the start of a six month process toward getting cured, and maybe a two year process to become himself again. And yet, I took it in stride. Maybe it was shock. Maybe it was the Zoloft I’d been taking for a few years since my anxiety over my son’s health and special needs had turned into constant high wire walking. Maybe it was our son’s recent 3-week hospitalization over the previous Christmas and New Years that had prepared me for another long haul, another effort in compartmentalization, the practice of segmenting my strife from my life.

Because that’s what you do when you abruptly–is there any other way?–learn that your husband has cancer and treatment begins even before either of you has time to prepare. There was no choosing, no strategy, no warning that I would suddenly become a single parent of our special needs child, the primary money-earner, as well as the grateful, if begrudging, hostess to the constant stream of family members and friends and child caregivers and dog walkers and house cleaners who offered their assistance. Every one of the 25 days he was in the hospital, I kept it together. The gun had gone off, the race had begun, the ground moved beneath us, and we had no choice but to run, a marathon and a sprint both. Exertion and fear of stopping forward movement drove every decision, every action.

Most people picture The Big Bang as just that, a big bang. Like a spark and a flame that suddenly brought the universe into being. Energy makes sense. Flipping the lightswitch makes sense. But if the universe truly began not from a bang, but from intense pressure that literally pressed the world into being, then how? I suppose it’s why we look to God; the answers are so minor compared to the wonders of the world, the wonders of blood, the white and the red. One day, long before we knew Mark had cancer, something happened and suddenly? He had cancer.

And maybe there are times in a person’s life that are so combustible that you are fused into another version of yourself. My husband may earn a new life by accepting life from another person, but perhaps he already is becoming someone else. Perhaps it doesn’t take blood to renew the spirit. And perhaps it doesn’t take God either. Perhaps the extreme pressure he is under will change him regardless of the transplant, of the noncancerous cells recreating in his body minutes, days, weeks, and months after. And perhaps the same is true for myself. I wonder, after so much pressure, how much of my previous self is still there? How much of me is memory? And, maybe I wonder, how many times can a person be recreated before the pressure becomes smothering and the light just dies out.

Ripple Effect

The dogs pull on their leashes, burn my hands with their palpable excitement. I reign Kobi in, his large white paws dancing, running in place on the sand, thick nails grabbing for purchase in the granules. Bending, I unhook leash from collar and he runs, all legs, pell-mell down the sun-grayed dock, his eighty-five pounds causing the wood slats to clack and jerk as he runs. Kobi is a glistening copper penny in the late afternoon sun, a cheerful child, my husband’s best friend. He hesitates only a moment before plunging into six feet of green-gray water. I make sure he is swimming safely before I turn my attention to the smaller mutt of a dog waiting impatiently at my feet.

Gracie leans forward, straining at the end of her leash, and barking sharply, repeatedly, as she watches Kobi swim. When I release her from her leash, she too runs down the dock, light and quick, her sled-dog tail a banner waving triumphantly above her back. But just as she reaches the end of the dock, sense surfaces and she skids to a stop. Instead of leaping, she leans forward, her short body coiled, eyes on Kobi as he knifes swiftly through the water, moving out toward the horizon. Gracie yips in frustration, then retreats, the hurdle too menacing for this tough little dog that so willingly takes on all bicycles or dogs daring to cross her path, but fears sprinklers and despises baths. No, Gracie tempers her entry into the water, and instead of leaping, she clips down the rocks piled tenuously along the edge to hold back the sandy beach, and walks herself into the water until she is forced to swim.

Gracie swims, but with uncertainty. She strains to hold her head above water, her slim white-bottomed muzzle reaching up and out of the water. Her small black nose, like a bead, flexes in and out as she breathes. There is nothing swank about Gracie’s style; she swims because she must, because she will be left out if she does not. For Gracie, it is the most taxing of workouts though she is in fine shape. She has a double-coat, and perhaps her line was kept warm by such coats in snowdrift dens dug along an Alaskan trail. Now, she is compelled to leap into a Minnesota lake simply for the pleasure of chasing after her packmate.

The dogs finish their initial lap around the dock and present themselves on the beach. While water slips from Kobi’s back like from the proverbial duck’s when he emerges from the depths, Gracie comes forth saturated, her tail weighted heavily downward and her ears plastered back to her skull, five extra pounds on her slight thirty-five pound frame. They each give vigorous head-to-tip-of-tail shakes and look to us for a clue to the next adventure. My husband tosses a stick, and they repeat the exercise.

For Kobi, swimming is simple. His physical attributes suggest that his ancestors retrieved ducks from marshes, that he was born to be one with the water. He is a big dog, but his chest is shaped like the prow of a ship, cutting efficiently through the water, his thick tail a rudder as he weaves and turns. His fur is sleek, even as he gains a double-coat in the cold months, and he maintains a layer of insulating fat over his muscles even at his leanest weight. Underwater, his legs move in a natural rhythm, his webbed toes helping push back water, gain distance.

By the end of the afternoon, the dogs tire and they spend more time along the beach. Kobi has attempted to chase down a jetski zipping by, bouncing on the wake created from its last pass. My husband calls him back, deciding it is best to keep the dogs near shore during this busy time on the lake. Kobi entertains himself by wading further down the shallow shoreline, his muzzle eye-deep in the water. My husband is by his side to investigate his finds. Occasionally, Kobi stops and paws at the bottom of the lake. There are minnows (I can feel their small bodies lightly strike my ankles as they swim maniacally about, frenzied by the chaos of two dogs and two humans invading their territory), a thick weed bed, and numerous rocks peppering the sand at the bottom of the lake keep Kobi busy searching. Occasionally, he dunks his entire head underwater to peer more closely at his treasure, his ears floating on the water like small lily pads. Briefly, he will settle on a spot, and begin to dig, kicking up sand clouds beneath the water. Success may come in the form of a stick he releases from its sandy confines, a large rock that rolls onto my husband’s toe or even an old plastic grocery bag. When Kobi completes his archeological dig, he wades out into deeper depths, only his head above the water, like Nessie, like a Kobi-shark, we joke.

Gracie, uninterested in Kobi’s pursuits, cares only for the tennis ball, and the inevitable result (another throw!) of bringing the ball back to me. I stand along the shallow water at the shore and throw the ball along the edge of the sand beneath an overhand of trees. The water is sun-dappled and Gracie retrieves eagerly, splashing through the water with abandon upon each throw. Catching prey, like catching Kobi, is Gracie’s pleasure. She is not any easy dog with a defensive dislike for most other dogs, but Gracie’s free spirit when she is running is a gift to my soul, and now she warms my heart with her wide-eyed, high-wire abandonment. While Kobi may be born to the water, Gracie was born to move along the ground.

At dinnertime, we coax the dogs out of the water and briskly towel them off. Still damp, Kobi’s fur curls slightly, and Gracie has recovered some of her size and tail fluff. We clip their collars to tie-outs, and watch for a minute as each dog munches from their bowl of kibble. There is something about the past hours with these dogs that reminds me of their greatest daily gift to me. Dogs instruct us to live more simply, I believe, to trust in instinct, and revel in the most basic of pleasures of being physical beings. With that thought, I dig into my own dinner, and wonder if I could be any happier than this. And there was no way of knowing that that happiness would be short-lived. But that’s the thing with dogs: we always know their lives will be short–hopefully, but oh so regretfully, shorter than ours.