Ad infinitum / Vigilance

Ad Infinitum

The first time it happened, we got out the books. Each one of them said this was likely to happen. Well, maybe not likely, but possible. Babies have seizures. They just do. Most of the time when there is a fever; and he had one. No one talks about it, but it’s more common than you’d think. That’s what the nurse in the ER told us after his second one, and his third. They gave us a DVD and a booklet. Our doctor told us her brother had had seizures as a child, and he was just fine. So we tried to believe we were normal. That what was happening was normal. That the panic was normal. Oh it was there, that fluttering bird, like Millay’s but with less hopeful feathers. But we talked ourselves down each time, like a negotiator on a bullhorn shouting to the suicidal that everything would be all right, that bailing out was not the answer, that we should just back away from the ledge. We convinced ourselves that as long as we didn’t panic, this very abnormal thing, this thing no one talks about, would move along. Nothing to see here but a dark cloud briefly obscuring the sun. The brain, like a hard drive, just needs to reboot sometimes. But after the next one came a CT scan and an appointment in neurology. It’s difficult to convince yourself that that is normal. Then the blood tests, the MRIs, the medications, the therapy, the special classrooms, the emergency phone calls. That time on the plane, already taking its place on the runway, and the pilot and all the passengers forced to return to the airport: that felt nothing like normal.

At no time in my fantasies about parenthood did I predict this sort of dissonance. Isn’t that why I took vitamins and said yes to those screening tests? A co-worker asked one day, “What, had you thought it was all going to be perfect?” And what do you say to that? No? Yes? Maybe? So we lived in a kind of maybe for a long time. That maybe things would be ok. That maybe babies grow out of these things, even though the DVD and booklet warned us that a child who has one seizure is more likely to have another, and so on. We would have to be watchful. We would have to be diligent. One of us would sleep with him at all times. We would keep our phones near us at all times. By the fifth, I suppose the likelihood of his having more had grown so exponentially I should have known then that the panic would soon find a place to perch, it’s tiny talons clutching on my aorta, its beating wings drowning out the beat of my own heart.

***

Vigilance

The night is quiet, the hum
of the air-conditioner in the window
is like no noise at all. I watch your chest move
rhythmically beneath the thin sheet, the sheet
pulled up over your thin arm, your arm
pulled up alongside your cheek. I can’t
see your eyes. Your small foot twitches again, against
my leg, and I stop, don’t move a muscle, don’t
take a breath, the quick rhythm of my heart
beats loudly in my ears. Slowly,
lightly, I press my leg against your leg and wait, wait
for the next rhythmic twitch, but the next
doesn’t come. I should reach over, put my finger
in the soft crook of your arm—at 8, still
more meat than sinew—, and slowly, lightly
pull your arm down from your cheek. I should look
at your eyes, see if your lashes beat rhythmically
against your cheek, a sight that sounds
an all too common alarm so quiet
you make no noise at all in the night.

Envy

The news that the baby has been born comes by email. There are exclamations around the office, like neighborhood fireworks whose rhythm of release is never quite mastered. There are gaping silences, then an “Oh!” and a “Baby!” I hold myself quite still and reread the email. A baby has been born to my coworker and his wife. It was a long delivery. A successful delivery. As they say, Mom and baby are doing fine. But I am looking for something else. I am sniffing for a hint. A hint that maybe not all is fine, and maybe I am not alone in having my idyllic dreams snuffed and reduced to smoke. I feel terrible, certainly. Write to a friend, the only one who understands: “Envy. It’s evil.” People use the phrase “murderous rage” as if it is the worst emotional pool a person can drop into, a force that will make a person do unspeakable and unforgiveable things. My envy may not cause me to kill, or maim, but I understand how it can because I feel poisoned by it. There was a murder here a year or two ago that was as horrifying and bizarre as any you’d read in the 14th book by a mystery thriller writer who has upped the ante with each book until she has ultimately run out of even semi-reasonable plots. A woman, desperate to have her own baby, murders a pregnant woman and removes the baby from her belly, hoping I suppose to keep it for her own, but kills the baby while performing the gruesome surgery in her basement. I would never. I know this. But I understand the pickling that spoils the heart, kills off empathy and human kindness like alcohol destroys bacteria. I want no one to ever be happy with healthy babies and fulfilled dreams. I must actively work to flush these feelings, drain them with a flood of self-talk to drive them like cattle back into the perimeter fence. The envy lives in me like a child. It grasps for someone to come and join it in its misery. Oh yes, misery loves company. How can I feel so alone among the rubble of my dreams? Won’t somebody come and play, somebody come and play today, I hear in my head the Sesame Street song that my now 8 year old son still listens to. He should be watching Star Wars or Disney films that I was all prepared to hate in all their lack of sophistication and misogyny. But I would kill to watch Aladdin for the umpteenth time, if only Noah’s mind could develop enough for him to fall in love with something new. There is so little new in a life set on repeat. Some parents write about how glorious it is when their kids with whatever kind of delay spit out a new word, or show a new interest. And it’s true. So true! There was a spark of joy when I asked Noah last night when he was playing in the bath with small animal figures who jump and splash into the water (a game he has played for 6 years made all the more fun when you accuse the figurines of being “bad” and not allowed to go the mall, which is Noah’s greatest fear) who the Bad Penguin was? He held him up over the lip of the bathtub and said, “Him!” It’s cute the way he said it. The way he says a lot of things, like “Day Du” for “Thank you.” And I celebrate it. Tell the story to Mark when he comes home. And we laugh as though we are happy and really feeling joy. But there is no true joy to be had in hearing your 8 year old son say a word that most kids master both verbally and grammatically many years prior. There is no true excitement that this work, this “him” might lead soon or someday to a sentence, or a story, or even, a glimpse into his inner life, if he has one. Does he? Does a child who has watched the same Elmo’s World episode 50 times have an inner life? Or is it like driving on autopilot? Sometimes I think being Noah must be like being a bit drunk all day, every day. His ataxia and nystagmus have him listing from side to side, and he trips and falls more times during a day than most of us in a year. But he shakes it off like a drunk might when pushing through the door of the bar the wrong way, or stumbling off a curb, or hitting a shin against the corner of the coffee table. He fumbles for words, spews emotions like a sad drunk who moves from giddiness to sadness between sips. He moves through is world with the same haze that I do when I’ve had too much to drink, but drive home confident that I know the way, that I will stick to the deepest worn grove, like I do when I get home and careen through the house to get water, Advil, let the dog out, stuff something salty in my mouth, brush my teeth, dress, not thinking keenly about anything. Everything is just a movement that leads to another movement that leads to another movement. And I hope I haven’t truly hurt myself in the process, and I’m certain that I will feel like shit the next day. How does Noah do that? How does he spend each day in some kind of quasi-coma that just leads to yet another day in that same fog and stumble and keep your head down kind of living. I know it is assumption. That I have no idea what his life is like. That none of us as parents know who our child will be. And for most parents that’s what’s so damn exciting. That’s the novelty. And that’s where our hope lies: it lies in potential. And my friend, the one with the new baby. He looks at her and sees the embodiment of all she can be. While I look at Noah and see what he will never be. How can I not be envious? Not of my friend’s good luck. But of his new daughter’s life? How can I not be envious of that life for Noah?

The Lottery

A urine collection bottle shaped just for bedridden men
leans in the bathroom sink, this time
collecting the drip-drip of a broken
faucet, the water bloody with rust.

An over-stuffed blue Lazy-boy,
arms dark where food-dirtied hands
rested while the television blared,
cups stained and frayed towels in its cushions.

On the drop-leaf table next to the chair,
a stiff and yellowed doily lies drunkenly under
a glass serving bowl offering up the remnants
of a last meal of chicken noodle soup.

Also on the table a copy of my mother
and father’s wedding bulletin and a picture
of his father and two other men dressed like 1920’s gangsters.
Numbers and notes doodled on paper scraps.

A lottery ticket, its corner trapped
beneath the soup bowl. Maybe the fruit flies
know if it held a winning number, if my father,
after death, became a winner after all.