Maybe

She only had one child because time ran out.
She only had one child because she had no time.
She only had one child because she feared what came next.
She only had one child because she feared she hadn’t enough love for more.
She only had one child because she feared she hadn’t enough love to start.
She only had one child because she didn’t know how she’d pay the bills.
She only had one child because one was all her money could buy.
She only had one child because one of herself was enough.
She only had one child because one was all her body could bear.
She only had one child so she could still hear herself think.
She had no children so she could hear herself think.
She had no children because even one was more than she could bear.
She had no children because her body would not bear even one.
She had no children because she couldn’t trust herself.
She had no children because the cost was too great.
She had no children because he chose to have none.
She had no children because she chose him instead.
She had no children because she didn’t meet him in time.
She had no children because she met her instead.
She had no children because there had never been the time.
She had many children because all she had had was time.
She had many children so she would have no time.
She had many children because they could afford many children.
She had many children because she’d been one of many children.
She had many children because she saw herself in each of them.
She had many children because her body bore the burden well.
She had many children because they required it.
She had many children because he required it.
She had many children because she imagined it would make him stay.
She had many children because she never imagined anything else.

Adagio

Most people claim that time passes too swiftly. Parents in particular. There isn’t a day that goes by that I don’t hear someone exclaim—at a birthday party, at the worrying of a loose tooth, at the advent of kindergarten, in celebration of a baby’s first steps—”They grow up so fast!” No, they don’t. Not always. When parenting a special needs child, one with delays in development, the reverse is true. Time passes slowly. Sure there are still the loose teeth, the outgrown corduroys, the first days of school. The body grows, and time passes, but we are parenting in adagio. There is still music playing but at a pace significantly slower and often less dynamic than the usual exciting, staccato rhythms of life with children. Sometimes, in this special kind of life, time plays out like a dirge. Particularly during the frequent illnesses you have no control over, or during the IEP [individualized education plan] meetings where for several hours a number of well-meaning people tell you, unrelentingly, just how behind your child is, or during the tantrums so inappropriate that it is anything you can do to make the seconds speed by before you can leave Target. Superficial, yet critical: I have been watching the same Elmo’s World episodes for nearly 10 years. I can no longer understand parents who bemoan the passage of time; I crave it. And yet, I also fear it because with each year, my son’s age splits like a widening gulf between the years and his capabilities. My 10 year old is a 3 year old; someday I hope my 25 year old will be my 10 year old.

The hard-won gift of this glacial pace is, however, in those moments when your child, no matter how delayed, shows the mastering of a new skill. Noah did not walk until he was 3 years old. And now, over a year later, I watch him with eyes filled with awe as he runs awkwardly through the grass at our neighborhood park. He did that! It is something he did, that he once hadn’t done! And in those moments, it doesn’t matter in the least that he looks nothing like the other children running around him, that his gait is herky-jerky and he is expressing a level of glee that have most of the kids looking at him like he’s just broken their favorite toy. It doesn’t matter the tears shed or the doctors’ appointments booked or the therapy sessions tolerated. In other words, the time that is past no longer matters. No. Those moments linger like a singular note held after a bold crescendo that is so beautiful, and simple, and clear that it is physically painful the longer it is held, and yet, you can only savor it as long as it lasts. 

My Phoenix

(2008 – Noah is three years old.)

Before he was born, each moment
simmered down so simply
to: happy, sad. Now I am neither. Never
one nor the other. A haze
has settled, an eclipse cloaks
the light, and I rummage, blind,
through piles of emotions, sinkholes
of scraps, all notes on a broken heart,
searching for clues, an X on a map, a route, a way out.

The world turned grey for us. No
bright colors any more for us,
our lives whittled down with
Unmet expectations shaved off in wormlike
curls. Lost dreams drop
off behind us like so much
debris in ditches, piles of discard and disuse.

Now my back bends.
My belly scrapes the ground.
I am loaded like a beast
of burden. My weight is weighted with wants
I can no longer put to work
in the hopes of shaping a life
for myself, for him, that is measured
by capacity and not by limits.
And I am tired, tired
of sorting feelings
into orderly bins: hope love disappointment.

Yet, one day, long
after he should, he points
To an apple, red and round
on a white page. Recognition. Cognition.
And there. Oh there it is.
Like a mouse burrowing
beneath fall leaves, like a faint voice
whispering from beneath rubble, hope stirs.
And like a pale green sprout, slow
in its uncoiling, Noah unfolds.
And suddenly I believe again.

Some day he will learn
his letters, his numbers, his name.
And on those new-colt legs, he will
run with friends, run from me,
from my arms that have carried him far too long.
He will run, fly, and I will
be the first mother to cheer, to say, to plead:
Go, my son, grow up too fast.
Like they all said you would. Go.