Lamentations at the Tomb

The smell for one thing.
Open the door and the odor
of mold hits you square
in the face. Say you
forgot something. Find sanctuary
in your car, your oh-so-clean
car, even the lingering smell
of McDonald’s lunch a relief.
(It was a long drive
to Dad’s. Only one reason
you rarely made it, traveling along
I-90 through LaCrosse, a glimpse
of the Mississippi and glacial-less
bluffs beautiful, too brief.)

The smell is the basement’s
annual spring flooding,
destroyed drywall downstairs. Descend
the wooden stairway
of the rectangle ranch
you grew up in. The extent! Weird
enough what he had saved. A baby
carriage, Lite Brite,
one of a pair of Rock ‘em Sock ‘em Robots,
school papers and child art, wilted with wet,
stacks of books, pages dried together
like shipwreck survivors
clinging to one another,
a Mexican tooled-leather purse, an old one-eyed bear, your hope
chest. All eroded
by the creeped-in water, not just
this year, but years. Saved
yet not salvaged.

Bugs, but you see those. Sills pilled
with Japanese beetles that look
like harmless ladybugs, but have their own
particular stench if you touch. Daddy
longlegs weaved homes into corners,
fly corpses suspended. The black
and red armor of boxelder bugs
in every corner.
Rodents too. Holes chewed
into walls. Insulation seeps out
like dirty cotton candy. If you are brave
enough to look for a water glass, you will see evidence.
Of mice creeping in and out of cupboards,
over mismatched dishes, Tupperware,
weaving amid yellowing boxes of
Morton’s salt, Hamburger Helper,
and amber bottles of pills
long since emptied.

Also you see your vain
efforts to help. Not enough
in the end, or maybe since
the beginning. You hand-wrote recipes
and taped them to those cabinet doors,
yellow now with age.
A soft blanket
you gifted at Christmas, crusted
with spilled food and obscured by 
shed dog hair, spread
over a sofa. The nice television is still nice, but
the pale blue recliner you bought with your brother
has gone limp with overuse. Strangely
you are reassured
that the casket you both chose
is quite lovely, pale blue satin to match
his eyes, though his eyes,
you both agreed,
were donated fast.

(There was nothing
you could do. There was everything
you could have done. But anger, well,
its seeps and rots too.)

Here there is no resurrection
long in coming. Roll the stone
away, and there is only a failed shrine
to keep your mother’s memory alive, what she left
before
she died. He shut his eyes
to decay in favor of dreams of days
when her collection
of tea cups, washed to gleaming,
posed on the polished table, debutantes awaiting
the Ladies’ Aid. Maybe he remembers
how he would cross the kitchen
in farm boots of hard leather, and steal
one more cookie, maybe the same kind
his mother had made
him when he was a young boy
coming in
from the fields.

(You will never know.
You will never stop knowing.)

Adagio

Most people claim that time passes too swiftly. Parents in particular. There isn’t a day that goes by that I don’t hear someone exclaim—at a birthday party, at the worrying of a loose tooth, at the advent of kindergarten, in celebration of a baby’s first steps—”They grow up so fast!” No, they don’t. Not always. When parenting a special needs child, one with delays in development, the reverse is true. Time passes slowly. Sure there are still the loose teeth, the outgrown corduroys, the first days of school. The body grows, and time passes, but we are parenting in adagio. There is still music playing but at a pace significantly slower and often less dynamic than the usual exciting, staccato rhythms of life with children. Sometimes, in this special kind of life, time plays out like a dirge. Particularly during the frequent illnesses you have no control over, or during the IEP [individualized education plan] meetings where for several hours a number of well-meaning people tell you, unrelentingly, just how behind your child is, or during the tantrums so inappropriate that it is anything you can do to make the seconds speed by before you can leave Target. Superficial, yet critical: I have been watching the same Elmo’s World episodes for nearly 10 years. I can no longer understand parents who bemoan the passage of time; I crave it. And yet, I also fear it because with each year, my son’s age splits like a widening gulf between the years and his capabilities. My 10 year old is a 3 year old; someday I hope my 25 year old will be my 10 year old.

The hard-won gift of this glacial pace is, however, in those moments when your child, no matter how delayed, shows the mastering of a new skill. Noah did not walk until he was 3 years old. And now, over a year later, I watch him with eyes filled with awe as he runs awkwardly through the grass at our neighborhood park. He did that! It is something he did, that he once hadn’t done! And in those moments, it doesn’t matter in the least that he looks nothing like the other children running around him, that his gait is herky-jerky and he is expressing a level of glee that have most of the kids looking at him like he’s just broken their favorite toy. It doesn’t matter the tears shed or the doctors’ appointments booked or the therapy sessions tolerated. In other words, the time that is past no longer matters. No. Those moments linger like a singular note held after a bold crescendo that is so beautiful, and simple, and clear that it is physically painful the longer it is held, and yet, you can only savor it as long as it lasts. 

My Phoenix

(2008 – Noah is three years old.)

Before he was born, each moment
simmered down so simply
to: happy, sad. Now I am neither. Never
one nor the other. A haze
has settled, an eclipse cloaks
the light, and I rummage, blind,
through piles of emotions, sinkholes
of scraps, all notes on a broken heart,
searching for clues, an X on a map, a route, a way out.

The world turned grey for us. No
bright colors any more for us,
our lives whittled down with
Unmet expectations shaved off in wormlike
curls. Lost dreams drop
off behind us like so much
debris in ditches, piles of discard and disuse.

Now my back bends.
My belly scrapes the ground.
I am loaded like a beast
of burden. My weight is weighted with wants
I can no longer put to work
in the hopes of shaping a life
for myself, for him, that is measured
by capacity and not by limits.
And I am tired, tired
of sorting feelings
into orderly bins: hope love disappointment.

Yet, one day, long
after he should, he points
To an apple, red and round
on a white page. Recognition. Cognition.
And there. Oh there it is.
Like a mouse burrowing
beneath fall leaves, like a faint voice
whispering from beneath rubble, hope stirs.
And like a pale green sprout, slow
in its uncoiling, Noah unfolds.
And suddenly I believe again.

Some day he will learn
his letters, his numbers, his name.
And on those new-colt legs, he will
run with friends, run from me,
from my arms that have carried him far too long.
He will run, fly, and I will
be the first mother to cheer, to say, to plead:
Go, my son, grow up too fast.
Like they all said you would. Go.