The Shadow

Between the conception
And the creation
Between the emotion
And the response
Falls the Shadow
Life is very long

~T.S.Eliot

One of the habits, or maybe disciplines, that you develop as a special needs parent is to look on the bright side, or at least, focus on the positives while rationalizing away what’s painful. Another of the habits is to be selective in how much of the shadow you are willing to show publicly. It’s a fine line between owning your emotions and being owned by them, but I suppose that’s what being an adult is largely about. I’m so proud of the kid that Noah has become, and I’m so relieved at his excitement at getting back to school. For how hard it is for Noah to learn, he loves learning.

For me, it was a hard, hard day. 6th grade should be an accomplishment– middle-school! tween! can you believe it? –but instead it’s a reminder that my 6th grader is a preschooler, and my preschooler is a 6th grader. And I think it’s important to…oh, I don’t know…sometimes show that it’s possible, but also a hell of a lot of work, to hold both the joy and the sorrow of my child’s life in my heart at one time.

All of us, at some point in our lives, confront loss of control over that which we desperately want, or at the very least, confront our inability to insure that the lives of those we love most will be as ideal as we wish for them. I hope Noah has a kick-ass 6th grade year, and I will, no doubt, figure out once again how to celebrate the ways that he gives so much more than he takes–which is really all we can ask of ourselves and our kids.

But today? Today is about making it through the hurt instead of denying that it’s there.

Zombie Star

There’s no way back believe me/
I’m writing you from there.

~Jorie Graham

I’ve been using you. I’ll fess up. I’ll play it as it lays. I’ve used you to feel significant again, to shine brighter than my own flat self. A penny no matter how tarnished gleams after time on the train track. A balloon is no fun without air. But now I feel myself slipping, just one last grain of sand slipping down the slick funnel, just one skyscraper lost in a horizon of metal and glass. Once the Chrysler Building was the shit, you know, the bees’ knees. Once it held significance. Now it is a hobby horse I still ride, a strawman I’ll argue as if I could win, if only I knew what I was arguing for. I feel small, there I’ve said it. I am dwarfed by the looming statues of twin monoliths: cancer and disability. I hate to say it but maybe I am Fitzgerald’s goddamn boat. (How many of the faint-hearted have claimed the same?) I am buffeted, and the green light, well I’m rowing against more than the current, more than the wind. I am rowing against anonymity. I heard love ride the air like an echo, and I chased it. I cupped it like water in my palm. Dare I say I am the rainbow that needs more than to be the treasure itself? I thought to have love was to be something at a time when I was nothing more than a plate for food, a table for the plate, the floor for the table, the earth for the floor. Settle it all upon me and I won’t shift, won’t tire. But take me for granted and I’ll forget I’m here. I’ll forget that maybe I was supposed to be dessert, if only someone had thought to take a bite. Still I will be sweet. I can hardly complain. There’s no telling what else could go wrong if I so much as make a peep. I am both the girl and the closet. The baby and the blanket. I am absence. I am the dark. And maybe it’s enough to be a thought, a star long extinguished and glinting only as memory. Careful. If you blink, I might miss me.

White Noise

You’ve gone quiet again, and I can hear
the neighbor’s dog barking and the rattle

of her old car’s tailpipe when she starts
it up and pulls away. The bank of windows

in the bedroom we no longer share lets in
much more sound than light. The thick leaves

of the big maple that leans over our roof
shades the heat, but does nothing for the noise.

Still your silence has me eavesdropping,
ear to the floorboards, for the slightest sound,

the whisper of your feet in thick socks,
the knock of your knuckle on the doorjamb,

the click of my doorknob turned. I listen
for some sign you are still here, maybe just

the clearing of your throat, maybe just
the whisper of the wind bending the blades

of grass you can no longer cut. Someone shouts
to her child, someone else starts his mower,

but now I hear the sluicing swirl of my blood,
the bulging beat of my heart behind my eyes.

Your has silence carved a space I begin to fill with
new sound. My desire a trumpet, my sadness a song.